SSDI ruined my healthcare

My SSDI has disqualified me from Medicaid and because I have Medicare I can’t get additional private insurance. My backpay has also put me over the asset limit for Medicaid. I had amazing healthcare on my states Medicaid. Now I’m super limited and don’t have access to In Home Support Services. Seems like I was better off since I at least got all my medical covered which was the most important. I had no idea my Medicaid would be taken away. It’s so wild. I understand not everyone goes over the limit but just the backpay alone will complicate the asset portion. I don’t know what to do. All of my backpay may just end up going to Medical care and hiring a caregiver out of pocket at this point. Venting mostly, but any insight is appreciated.